Identity area
Type of entity
Peak council
Authorized form of name
Haemophilia Foundation of Australia
Parallel form(s) of name
Standardized form(s) of name according to other rules
Other form(s) of name
- Australian Federation of Haemophilia Societies
- Haemophilia Foundation Australia
Identifiers for corporate bodies
Description area
Dates of existence
1979 -
History
The Australian Federation of Haemophilia Societies was formed in 1979 by state associations in Victoria, New South Wales and South Australia and was incorporated in 1986. Societies and support groups also formed in Queensland, Western Australia, Tasmania, Hunter Valley, Australian Capital Territory and Northern Territory and became part of the federation which changed its name to the Haemophilia Foundation of Australia. The Foundation represents people with haemophilia, von Willebrand disorder and other related inherited bleeding disorders, through advocacy, education and research. Its early work was directed towards lobbying for improved treatment facilities, blood product supplies and counselling services. From the mid 1980s it campaigned for access to safer supplies of blood products which had became contaminated by the Human Immunodeficiency Virus and hepatitis C, and it extended its role to ensuring that treatment and support for people with haemophilia infected as a result was available. The Foundation adopted the name Haemophilia Foundation Australia from 1993 with the adoption of a new logo.
Places
Legal status
Functions, occupations and activities
Mandates/sources of authority
Internal structures/genealogy
General context
Relationships area
Access points area
Subject access points
Place access points
Occupations
Control area
Authority record identifier
Institution identifier
Rules and/or conventions used
Status
Level of detail
Dates of creation, revision and deletion
Entered from deposit description 22 November 2012
Language(s)
Script(s)
Sources
Haemophilia Foundation Australia website: www.haemophilia.org.au