Haemophilia Foundation of Australia

Identity area

Type of entity

Peak council

Authorized form of name

Haemophilia Foundation of Australia

Parallel form(s) of name

Standardized form(s) of name according to other rules

Other form(s) of name

  • Australian Federation of Haemophilia Societies
  • Haemophilia Foundation Australia

Identifiers for corporate bodies

Description area

Dates of existence

1979 -

History

The Australian Federation of Haemophilia Societies was formed in 1979 by state associations in Victoria, New South Wales and South Australia and was incorporated in 1986. Societies and support groups also formed in Queensland, Western Australia, Tasmania, Hunter Valley, Australian Capital Territory and Northern Territory and became part of the federation which changed its name to the Haemophilia Foundation of Australia. The Foundation represents people with haemophilia, von Willebrand disorder and other related inherited bleeding disorders, through advocacy, education and research. Its early work was directed towards lobbying for improved treatment facilities, blood product supplies and counselling services. From the mid 1980s it campaigned for access to safer supplies of blood products which had became contaminated by the Human Immunodeficiency Virus and hepatitis C, and it extended its role to ensuring that treatment and support for people with haemophilia infected as a result was available. The Foundation adopted the name Haemophilia Foundation Australia from 1993 with the adoption of a new logo.

Places

Legal status

Functions, occupations and activities

Mandates/sources of authority

Internal structures/genealogy

General context

Relationships area

Access points area

Occupations

Control area

Authority record identifier

Institution identifier

Rules and/or conventions used

Status

Level of detail

Dates of creation, revision and deletion

Entered from deposit description 22 November 2012

Language(s)

Script(s)

Sources

Haemophilia Foundation Australia website: www.haemophilia.org.au

Maintenance notes

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